Posts Tagged guidelines

Guestpost: Karen Hellekson on research ethics

Since fan studies questionnaires and surveys aren’t released every day, I thought it might be interesting to hear from professionals in the field about their experiences. With any luck, we’ll see more of these posts in the future. For the moment, I’m pleased to introduce a woman who needs no introduction: Karen Hellekson, co-editor of Transformative Works and Cultures and Fan Fiction and Fan Communities in the Age of the Internet. -Madeline

Fandom research methods

Karen Hellekson

ClinicalTrials.gov provides a model for Fandom Research in terms of attempting to corral study information in one handy place. Fandom Research collects various methods of polling or querying various fan communities, whereas ClinicalTrials.gov collects information about clinical trials that may be accessed by researchers and by regular people who may want to get in on that new cancer drug trial. Compared with creating a good set of valid measures in the ethnography-based fan world, setting up a clinical trial is easy, if only because its protocols are universally well understood, thanks to tried-and-true codes of best practice. Institutional review board approval? Check! Informed consent? Check! Double-blind randomization? Check! Validated questionnaire? Check! Statistical analysis with the correct test for the type of data? Check!

Of course it’s inappropriate to generalize the protocols used in medical clinical trials to fandom research, but many acafans setting up studies need to be aware of the requirements that will ensure the validity—and publishability—of their work. Before initiating a study that involves human subjects, acafans affiliated with a university may need to wend their way through their institution’s byzantine institutional review board (IRB) paperwork, where they will be faced with ridiculous requirements that have nothing to do with their discipline. IRBs generally work with proposed studies that are biomedical or behavioral, not in the field of social science, and the one-size-fits-all paperwork reflects that.

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